Who is BDSRA?
The Batten Disease Support and Research Association (BDSRA) is the largest nonprofit organization in North America dedicated to funding research, advancing education, providing family support services and raising awareness of Batten disease and its impact.
What is the BDSRA Family Conference?
BDSRA’s Annual Family Conference has created a strong community of support for families impacted by Batten disease. It is the premier forum in North America for Batten disease family support, education, scientific presentations, networking and research participation. In 2018, 480+ attendees traveled to Nashville for three full days of support, education and research programming! The social time at this event creates meaningful, often lifelong, friendships and relationships.
Why Support as a Sponsor?
Individuals and organizations of all sizes make it possible for our mission to create this one of a kind family-centered event. Whether it is a $500 donation or a $5,000 donation, it is extended family, friends and community members that make this the only event of its kind in North America. Sponsoring the 2019 Family Conference in Denver directly impacts our work, allowing us to continue our commitment to bridging the gaps in geography, knowledge and collaboration in service of important support and research efforts. For 30 years, the BDSRA Family Conference has been the cornerstone of our support programming and holds deep meaning to the community.
A Special Thank You to our Sponsors
Beyond Batten Disease Foundation
Mary Payton Miracle Foundation
Gayle Holton Design
Metro NY/NJ Chapter BDSRA
Polaryx Therapeutics, Inc
Sanford Children’s Research Center
Drew’s Hope Research Foundation
Web, Carol and John Ireland
Joel, Christine, Jaron and Kody Maynard
Brian and Evan Callan
Garrett the Grand
Little Batten Warriors
Ohio Chapter BDSRA